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Privacy Policy

Easter Seals Online Network Privacy Policy

Last Updated April 3, 2006

Notification of Change
The Information We Collect
Opting Out
Your California Privacy Rights
Correct/Update Your Profile
Aggregate Information
Cookies
Security of Your Information
Tell-A-Friend, Ecards and Personal Fundraising Pages
Links to Other Web Sites
Information from Children
Transmission of Health-Related Data

Welcome to the Easter Seals Online Network, the Web site of Easter Seals, Inc. (Easter Seals headquarters) and participating Easter Seals affiliates across the country.

Because Easter Seals values the privacy of constituents visiting the Easter Seals Online Network, users of the Easter Seals Online Network have the right to manage their own personal information.

You can contact Easter Seals for more information related to the privacy of the information you provide online:

Mail:  233 South Wacker Drive, Suite 2400, Chicago, IL 60606.
Phone:  312-726-6200
Online:  Click here to contact Easter Seals via email. Your request will be answered within 2-3 business days.

Notification of Change
Easter Seals reserves the right to change this policy at any time. Easter Seals privacy policy will be kept up-to-date and clearly posted on our Web site.

The Information We Collect
On many pages of the Easter Seals Online Network -- in particular when donating online, completing an action alert, registering for a special event, purchasing a product, or completing various feedback forms -- visitors are asked to list name, address, and other personal contact information. Information collected is specifically and knowingly provided by site visitors and may include name, email address, format preference (HTML vs. text), address, telephone number, interests and other similar information. Collecting this information helps Easter Seals to better provide site visitors with relevant and useful content.

Easter Seals has partnered with Convio, Inc. to power the Web content, email and transaction processing capabilities to serve our constituents and fulfill our mission on the Internet. Convio, Inc. is an Internet software and services company that provides online electronic Constituent Relationship Management (eCRM) solutions for nonprofit organizations and higher education institutions. Convio will not disclose your name or other personally identifiable information (such as your e-mail address or phone number) to any party other than Easter Seals.

Neither Easter Seals nor Convio store sensitive information such as credit card numbers. When an online transaction is completed through the Easter Seals Online Network, such as a charitable contribution, credit card information is used solely for the purpose of completing that specific transaction and is not retained in the Easter Seals or Convio database.

Easter Seals will not sell, share or exchange personal contact information collected from this Web site with other organizations. If a user has a previous relationship with Easter Seals through another channel (i.e., mail, phone), Easter Seals will occasionally rent or exchange those names and addresses with other organizations as a way of providing extra funds to help support services. If you do not want to participate in this program, please let us know.

Visitors to the Easter Seals Online Network are not required to share any personally identifiable information. Users who do not wish to share personal information when visiting the Easter Seals Online Network can still access the Network's Web pages and the valuable information provided.

Opting Out
Easter Seals provides site visitors with the opportunity to opt-out of receiving our online and offline communications.

If you would like to opt-out of receiving email communications please update your user profile. Email unsubscribe requests are processed immediately.

To discontinue the receipt of postal mail, please contact Easter Seals. Shortly, Easter Seals will be adding the capability to remove your name from our postal mailing list online. You'll need to register as user of the Easter Seals Online Network. Please note: there is a 8-12 week lapse period due to the fact that a subsequent mailing may already be in production. If you do receive another mailing, please disregard it.

Your California Privacy Rights
To review a special notice for California residents only per California Privacy Law (SB27): Exchanging, Renting, Reselling Personal Information, please visit the "Your California Privacy Rights" section. 

Correct/Update Your Profile
Easter Seals offers the option to change and modify personally identifiable information. Upon your request, Easter Seals will remove personally identifying information retained in organizational databases. If you are a registered user of this site, you can access your Easter Seals profile and update your contact information and user preferences by clicking here.

Easter Seals reserves the right to maintain information on users who have had their access to the Easter Seals Online Network blocked.

Aggregate Information
Demographic and profile data (i.e., age, gender, browser usage) is also collected via the Easter Seals Online Network. Easter Seals uses such data to improve marketing and promotional efforts, statistically analyze site usage, improve content and product offerings and to customize site content, layout, and services. Additionally, this data may be shared with third parties on an aggregated basis. Easter Seals does not share personally identifying information with third parties, except to a court or governmental agency if required by law and as stated above in the section titled "The Information We Collect."

Cookies
A cookie is a small text file a Web site places on a site visitor’s computer hard drive. Its purpose is to let the site know when a user visits and to perform certain functions such as saving passwords and personal preferences.
 
Cookies help evaluate visitors' use of a Web site, such as what viewers want to see and what they never read. This information allows Easter Seals to better focus online information and to concentrate on information people are using.

Your browser is probably set to accept cookies. If you would like to turn this feature off, you will need to change the settings of your Internet browser.

Security of Your Information
All credit card and personal profile information provided to Easter Seals or our Internet software partner, Convio, Inc., is transmitted using SSL (Secure Socket Layer) encryption using Verisign as a payment gateway. SSL is a proven coding system that allows a browser to automatically encrypt, or scramble, data before it is sent.

Easter Seals also protects account information by placing it on a secure portion of the Easter Seals Online Network that is only accessible by certain qualified employees of Easter Seals. Unfortunately, no data transmission over the Internet is 100% secure. Easter Seals strives to protect your information, however cannot ensure or warrant the security of such information.

Tell-A-Friend, Ecards and Personal Fundraising Pages
If you elect to use the referral service to inform a friend about a page on the Easter Seals Online Network, send an ecard, or raise funds for Easter Seals by soliciting friends and family, you will be asked for the friend's name and email address. Easter Seals will automatically send the friend a one-time email inviting them to visit the site. Easter Seals stores this information to send this one-time email only. In addition, the contact information will be maintained solely for the future convenience of the individual who provided the information -- to send subsequent ecards or fundraising reminders/updates.

Links to Other Web Sites
Easter Seals has links to other Web sites outside of the Easter Seals Online Network. Easter Seals is not responsible for the content of any linked Web site, or any link contained in a linked Web site, or any changes or updates to such Web sites. The inclusion of any link does not imply endorsement by Easter Seals of that Web site.

In addition, please be aware that Easter Seals is not responsible for the privacy practices of such other Web sites. Easter Seals encourages you to read the privacy statements of each and every Web site that requests personal information from you.

Information from Children
Easter Seals does not seek to collect personal information about children through the Easter Seals Online Network. If a child submits information through any part of the Network, and Easter Seals is aware that the user submitting the information is a child, the information is not used for any purpose, nor is it disclosed to third parties. Easter Seals will comply with all regulations set forward by the Children’s Online Privacy Protection Act (COPPA). To learn more about COPPA, visit the Federal Trade Commission.

Transmission of Health-Related Data
Easter Seals understands the sensitivity of collecting and using health-related data. Personally identifiable health-related data collected on the Easter Seals Online Network will not be shared with entities other than Easter Seals, Inc., and Easter Seals affiliates. Any transfer of personally identifiable health-related data between Easter Seals organizations will take place in a secure environment with access allowed only to certain qualified employees of Easter Seals. Easter Seals will comply with all regulations set forward by the Health Insurance Portability and Accountability Act (HIPAA). To learn more about HIPAA, visit the U.S. Department of Health and Human Services Office for Civil Rights.

NOTICE OF PRIVACY PRACTICES

The Capper Foundation Easter Seals
This Notice of Privacy Practices is effective as of 02/17/2004.

THIS NOTICE DESCRIBES HOW MEDICAL INFORMATION ABOUT YOU MAY BE USED AND DISCLOSED AND HOW YOU CAN GET ACCESS TO THIS INFORMATION. PLEASE REVIEW IT CAREFULLY.

UNDERSTANDING YOUR MEDICAL INFORMATION - ITS USES & DISCLOSURES:
Certain laws require that you be provided “Notice” of our privacy practices that relate to your medical information. Our privacy practices are contained within this “Notice.” This “Notice” applies to the protected health records of your care provided by our employees. Your personal doctor, other health care providers, or your health insurance
plan may have different privacy policies or “notices” regarding the doctor’s, others provider’s, or the plan’s use and disclosure of your health information.

CONTACT PERSON IF YOU HAVE QUESTIONS:
If you have any questions about this notice or our privacy practices relating to your health information please contact the following person:
Sandy Warren
Vice President, Operations
The Capper Foundation Easter Seals
 3500 SW 10th Avenue
Topeka, Kansas 66604
warren@capper.easterseals.com
785-272-4060  (Telephone)
785-272-7912  (Fax)

This “Notice” contains information in the following general categories:

WHAT IS YOUR HEALTH RECORD / INFORMATION?
Each time you receive medical care from a hospital, physician, or other healthcare provider, a record of your visit is made. Typically, this record contains a history of your illnesses or injuries, symptoms, exam & laboratory results, treatment provided and treatment plans, and notes on future care. Depending on your health care situation your record may contain more or different information. How your health information is used is described on the following pages.
     
WHAT ARE THE RESPONSIBILITIES OF THE CAPPER FOUNDATION EASTER SEALS WHEN IT COMES TO YOUR HEALTH INFORMATION?
The Capper Foundation Easter Seals is required by law to:

  • keep your health information private and only disclose it when required to do so by law;
  • explain our legal duties and privacy practices in connection with your health records;
  • obey the rules found in this notice;
  • inform you when we are unable to agree to a requested restriction that you have given us;
  • accommodate your reasonable request for an alternative means of delivery or destination when sending your health information.

We will not use or disclose your health information without your authorization, except as
explained in this notice or as required by law. Certain laws may require that we disclose your health information without your authorization. We are obligated to follow those laws.

WHAT ARE YOUR HEALTH INFORMATION RIGHTS?
Although your health record is the physical property of the healthcare practitioner or facility that compiled it, the information belongs to you. You have the right to:

Inspect and Copy Your Records. You have the right to inspect and obtain a copy of certain health information that may be used to make decisions about your care. Usually, this includes medical and billing records, but does not include psychotherapy notes, information compiled in reasonable anticipation of, or for use in, a civil, criminal, or administrative action or proceeding, information that is subject to special laws or other information not contained in the medical or billing records.

To inspect and obtain a copy of your health information you must submit your request in writing to the contact person listed on page 1. If you request a copy of the information, we may charge a reasonable cost-based fee for copying, including labor & supplies, and the cost of postage.

We may deny your request to inspect and copy in certain very limited circumstances. Certain reasons for the denial are not reviewable and some are reviewable. If you are denied access to health information you will be told in writing. In certain circumstances, however, you may request that the denial be reviewed. If the original denial of access to the medical records was made by a licensed health care provider as allowed by law, another licensed healthcare professional chosen by Capper will review your request and the denial. The person conducting the review will not be the person who denied your request. We will comply with the outcome of the review. You will be advised in writing of this reviewing official’s decision.

Right to Amend Your Records. If you feel that health information we have about you is incorrect or incomplete, you may ask us to amend / change the information. You have the right to request an amendment for as long as the information is kept by or for The Capper Foundation Easter Seals. To request an amendment, your request must be made in writing and submitted to the contact person listed on page 1. In addition, you must provide a reason that supports your request.

We may deny your request for an amendment if it is not in writing or does not include a reason to support the request. In addition, we may deny your request if you ask us to amend information that:

  • was not created by The Capper Foundation Easter Seals, unless the person or entity that created the information is no longer available to make the amendment;
  • is not part of the health information kept by or for Capper;
  • is not part of the information which you would be permitted to inspect and copy; or 
  • is accurate and complete.

Right to an Accounting of Disclosures. You have the right to request, in certain
circumstances, an “accounting of disclosures.” An “accounting” is a list of the disclosures we made of health information about you.

To request this list or accounting of disclosures, you must submit your request in writing to the Capper contact person listed on page 1. Your request must state a time period, which may not be longer than six years and may not include dates before April 14, 2003. Your request should indicate in what form you want the list (for example, on paper, electronically or some other form). We may charge you for the costs of providing the list. We will notify you of the cost involved and you may choose to withdraw or modify your request at that time before any costs are incurred.

Right to Request Restrictions. You have the right to request a restriction on the health information we use or disclose about you for treatment, payment or healthcare operations. You also have the right to request a limit on the health information we disclose about you to someone who is involved in your care or the payment for your care, like a family member or friend. For example, you could ask that (1) we not use or disclose information about services received or (2) that certain people not be told of certain information.

We are not required to agree to your request. Only the Privacy Official can agree to your request. If we do agree, we will notify you in writing and comply with your request unless the information is needed to provide emergency treatment. If we agree to a restriction we may terminate any restriction if you agree to the termination or if we inform you that we are terminating our agreement to the restriction. You may also terminate any restriction.

How to make a request. To request restrictions or limitations, you must make your request in writing to the Contact Person, listed on page 1. In your request, you must tell us (1) what information you want to limit; (2) whether you want to limit our use, disclosure or both; and (3) to whom you want the limits to apply, for example, disclosures to your spouse.

Right to Request Confidential Communications. You have the right to request that we communicate with you about your services in a certain way or at a certain location. For example, you can ask that we only contact you at work or by mail. To request confidential communications, you must make your request in writing to the
Contact Person listed on page 1. We will not ask you the reason for your request. We may ask you for clarification so we can understand your request. You are not required to give an explanation. We will accommodate all reasonable requests. Your request must specify how or where you wish to be contacted.

Right to a Paper Copy of This Notice. You have the right to a paper copy of this notice. You may ask us to give you a copy of this notice at any time. Even if you have agreed to receive this notice electronically, you are still entitled to a paper copy of this notice. To obtain a paper copy of this notice you may contact the Contact Person, listed on page 1. You may also obtain a copy of this notice at our website, http://www.capper.org/

HOW WILL WE USE AND DISCLOSE YOUR HEALTH INFORMATION?

For Treatment. We may use health information about you to provide you with treatment or services. We may disclose health information about you to other Capper staff who are involved in providing you services.

For example, different service areas at Capper  may share health information about you in order to coordinate the different services you receive, such as Outpatient and Recreation or Kidlink , Pediatric Therapy and Assistive Technology. We also may disclose health information about you to people outside Capper who may be involved in your care.

For Payment. We may use and disclose health information about you so that the treatment and services you receive at The Capper Foundation Easter Seals may be billed to and payment may be collected from you, an insurance company or a third party.

For example, we may need to give your health plan (health insurance company) information about services you received at Capper so your health plan will pay us or reimburse you for the services. We may also tell your health plan about a treatment you are going to receive in order to obtain prior approval or to determine whether your plan will cover the treatment. This may include filing statutory liens to collect amounts owed to us for your treatment, care, and maintenance.

For Health Care Operations. We may use and disclose health information about you for the operation of The Capper Foundation Easter Seals. These uses and disclosures are necessary to run Capper and to make sure that all of our consumers receive quality care.

For example, we may use health information to review our treatment and services and to evaluate the performance of our staff in caring for you. We may combine health information about many consumers to decide what additional services The Capper Foundation Easter Seals should offer, what services are not needed, and whether certain new treatments are effective. We may disclose information to doctors, nurses, therapists, college practicum students at Capper, and other personnel for review and learning purposes. We may also combine the health information we have with health information from other organizations to compare how we are doing and see where we can make improvements in the care and services that we offer. We may remove information that identifies you from this set of health information so others may use it to study health care delivery without learning who the specific patients are. Examples of uses and disclosures for “health care operations” include:

  • activities relating to improving health or reducing health care costs
  • protocol development,
  • care management,
  • training, accreditation, certification, licensing, credentialing or other related
     activities,
  • underwriting and other insurance related functions,
  • medical review and auditing functions, including fraud and abuse detection and
     compliance programs,
  • conducting or arranging for legal services for Capper, its staff or personnel,
     business planning and development, business management and general
     administrative activities
  • internal grievance resolution,
       

Appointment Reminders. We may use and disclose health information to contact you, a family member or friend involved in your health care or as authorized by you as a reminder that you have an appointment for treatment or medical care at our facility. We may also leave a reminder on your answering machine/voice mail system unless you tell us not to.

Treatment Alternatives. We may use and disclose health information to tell you about or recommend possible treatment options or alternatives that may be of interest to you.

Health-Related Benefits and Services. We may use and disclose health information to tell you about health-related benefits or services that may be of interest to you.

Individuals Involved in Your Care or Payment for Your Care. We may release health information about you to a friend or family member who is involved in your medical care. We may also give information to someone who helps pay for your care.  If you want this information restricted you must tell us by using the required procedure.

As Required By Law. We will disclose health information about you when required to do so by federal, state or local law. This may include reporting of, abuse, health oversight matters and other public policy requirements. We may be required to report this information without your permission.

To Avert a Serious Threat to Health or Safety. We may use and disclose health
information about you when necessary to prevent a serious threat to your health and safety or the health and safety of the public or another person. Any disclosure, however, would only be to someone able to help prevent the threat.

SPECIAL SITUATIONS: (Sharing of information without your permission)

Military and Veterans.  If you are a member of the armed forces, we may release health information about you as required by military command authorities.  We may also release health information about foreign military personnel to the appropriate foreign military authority.

Workers’ Compensation. We may release health information about you for workers’ compensation or similar programs. These programs provide benefits for work-related injuries or illness.

Public Health Activities. We may disclose health information about you without your permission for public health activities. These activities generally include the following:

  • to report child abuse or neglect;
  • to report reactions to medications or problems with products;
  • to notify people of recalls of products they may be using;
  • to notify a person who may have been exposed to a disease or may be at risk for contracting or spreading a disease or condition;
  • to notify the appropriate government authority if we believe a consumer has been the victim of abuse, neglect or domestic violence. We will only make this if  you agree or when required or authorized by law.

Health Oversight Activities. We may disclose health information without your
permission to a health oversight agency for activities authorized by law. These oversight activities include, for example, audits, investigations, inspections, and licensure. These activities are necessary for the government to monitor the health care system, government programs, licensing functions, and compliance with civil rights laws.

Lawsuits and Disputes. If you are involved in a lawsuit or in a dispute, we may disclose health information about you in response to a court or administrative order. We may also disclose health information about you in response to a court or administrative order even if you are not involved in the lawsuit or dispute. We may also disclose health information about you in response to a subpoena, discovery request, or other lawful process by someone else involved in the dispute, but only if efforts have been made to tell you about the request or to obtain an order protecting the information requested or as otherwise permitted by law.

Law Enforcement. We may release health information if asked to do so by a law
 enforcement official:

  • in response to a court order, subpoena, warrant, summons or similar process;
  • to identify or locate a suspect, fugitive, material witness, or missing person;
  • about the victim of a crime if, under certain limited circumstances, we are unable to obtain the person’s agreement;
  • about a death we believe may be the result of criminal conduct:
  • about criminal conduct at Capper; and
  • in emergency circumstances to report a crime; the location of the crime or victims; or the identity, description or location of the person who committed the crime.

Coroners and Medical Examiners.  We may release health information to a coroner or medical examiner.  This may be necessary, for example, to identify a deceased person or determine the cause of death. 

National Security and Intelligence Activities.  We may release health information about you to authorized federal officials for intelligence, counterintelligence, and other national security activities authorized by law.

Protective Services for the President and Others.  We may disclose health information about you to authorized federal officials so they may provide protection to the President, other authorized persons or foreign heads of state or conduct special investigations.


OTHERS USES AND DISCLOSURES - REVOKING PREVIOUS PERMISSION TO USE OR DISCLOSE YOUR HEALTH INFORMATION:

Other uses and disclosures of health information not covered by this notice or
the laws that apply to us will be made only with your written permission. For certain disclosures of your information you must complete an “authorization” form and submit it to us. If you provide us permission to use or disclose health information about you, you may revoke that permission, in writing, at any time. To revoke any permission already given to us or permission given to us in the future you must revoke that permission in writing by sending it to the Contact Person listed on page 1. If you revoke your permission, we will no longer use or disclose health information about you for the reasons covered by your written authorization. You understand that we are unable to take back any disclosures we have already made with your permission, and that we are required to retain our records of the care that we provided to you.

WHAT SHOULD YOU DO IF YOU HAVE A COMPLAINT CONCERNING YOUR
MEDICAL RECORDS?

If you believe your privacy rights have been violated, you may file a complaint
with The Capper Foundation Easter Seals or with the Secretary of the Department of Health and Human Services. To file a complaint with Capper or to receive additional information as to how to file a complaint with the Department of Health and Human Services, contact the Contact Person listed on page 1. All complaints must be submitted in writing.

YOU WILL NOT BE PENALIZED FOR FILING A COMPLAINT.  

IF CHANGES ARE MADE TO THIS NOTICE:
We reserve the right to change this notice. We reserve the right to make the revised or changed notice effective for health information we already have about you as well as any information we receive in the future. A current copy of our Notice of Privacy Practices is available at The Capper Foundation Easter Seals reception desk. You will find the date the notice became effective at the top of the first page below the title. In addition, each time you come to Capper for new treatment or healthcare services, a copy of the current notice in effect will be given to you if you request it.

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